In north Cumbria we value the input and ideas of patients, our community the Third Sector and our frontline staff when we think about service development and improvement.
We want the people that use and work in our services to be the ones helping to shape them for the future.
Following the Healthcare For The Future public consultation in 2016 (more information below) we have ensured that we involve our community in not only supporting how services may change, but also in understanding the challenges the NHS faces.
We are aware that the NHS is full of acronyms which can be difficult to remember or understand so here a link to a helpful NHS 'Acronym Buster' , which you may find useful.
Our commissioning teams work with our providers to improve and develop services. In our workstreams we endeavour to involve patients, carers, the third sector, families and community groups - seeking their views, sharing their feedback and ensuring their voices help us to shape services.
If you require information in a different format or you want to discuss further how you can get involved please e-mail: email@example.com or call 01768 245437.
You can view our upcoming meetings and events here
Do you want to get involved?
To get involved, ask questions, provide feedback, raise ideas or for more information please e-mail: firstname.lastname@example.org, or call 01768 245437 and we will link you to an appropriate workstream.
There are many other ways YOU can help get involved and shape the health services in YOUR community.
NHS North Cumbria Clinical Commissioning Group (CCG) is keen to listen to what YOU have to say and how YOU want services to develop.
We also want to keep YOU updated on developments and also how YOUR INVOLVEMENT has made a difference to services, strategic plans and ultimately people's health and wellbeing.
Much of this work is currently channelled through our Co-production/Working Together workstreams. See how YOUR involvement is helping to shape services in north Cumbria. The journey to OUR co-production channels can be explored further through this page and subsequent links.
- Provide feedback on your experience of health services
- Receive information and take part in completing surveys and questionnaires
- Join your GP practice Patient Participation Group (PPG)
- Attending public meetings and commenting on consultations
- Join forums and workshops looking at service development
- Become a member of a local foundation trust – a hospital or community trust.
More about these channels can be found on this web page, or have a link on this web page.
- We listen and respond to feedback – this can be provided through the Friends and Family tests and 2 Minutes of your time tests, we review compliments and complaints and we work closely with Healthwatch Cumbria
- We listen and respond to ideas and concerns raised by our elected representatives, MPs, councillors and governors at our Foundation Trust
- We involve experts – that’s patients who use services, their family and carers, as well as frontline staff in workshops to improve our services. Our Rapid Process Improvement Workshop (RPIW) programme is run by Cumbria Learning and Improvement Collaborative (CLIC) and puts staff and service users in the driving seat to improve specific pathways and teams
- We involve the public - we are developing co-production as the way we work with our community, Third sector, partners and colleagues to make improvements. Since 2017 we have established the Working Together Steering Group overseeing how we can support maternity and paediatric services and we are working with Building Health Partnerships around stroke prevention.
- We have recruited a Health Partnerships Officer (Clare Edwards) who is funded by the NHS and hosted by Cumbria CVS to help us build links to the Third Sector at a local level and challenge our leadership to involve and support the Third Sector at a strategic level (more info on this role below).
The CCG follows government policy, gathers information from patients, health professionals, partners across the health & social care system and third sector organisations to ensure that it commissions the right healthcare, in the right place, at the right time.
The CCG's Governing Body is our main decision-making forum and is made up of 12 Members, 6 of whom are non-officer Members which means they are not permanent post holders of the CCG but have put themselves forward for these roles because they are interested members of our communities.
They are there to provide effective challenge to the decision making process and, along with the other Governing Body Members, ensure the Governing Body carries out the functions conferred on it by national legislation together with any other functions which may be specified in regulations or in the CCG’s Constitution.
Our Communication and Engagement Approach (2016-2020) demonstrates how we aim to put patients at the heart of decision making.
Denise Leslie (pictured right) is the Lay Member for Patient & Public Engagement with a remit to ensure that the CCG engages with its patients and its communities. In addition Healthwatch Cumbria and the Local Medical Committee are invited to attend all Governing Body and Primary Care Committee meetings and have observer status.
This enables them to provide feedback from the public and GP perspectives during debates.
Through our Integrated Care Communities (ICCs) work in particular (as detailed above under 'how the community is helping us right now) we are working towards better outcomes for all.
West, North & East Cumbria has been divided into eight Integrated Care Communities based on clusters of GP practices and their registered populations. By understanding the challenges that each area faces it is hoped that the community can work together with health and care organisations to improve the health and wellbeing of local people.
Detailed profiles have been developed for each ICC to support the planning of future services. They cover information on the population and local health needs - this includes Health Inequalities.
- Link to Joint Strategic Needs Assessment (JSNA) on the Cumbria Observatory website.
- JSNA - Health Inequalities Chapter
- Go to main profiles page.
- ICC Supporting workbook (August 2017)
- Map of Cumbria with ICC boundaries
- Carlisle Rural ICC Profile (June 2017)
- Carlisle Rural ICC Appendix
- Carlisle Urban ICC Profile (July 2017)
- Carlisle Urban ICC Appendix
- Cockermouth & Maryport ICC Profile (June 2017)
- Cockermouth & Maryport ICC Appendix
- Copeland ICC Profile (June 2017)
- Copeland ICC Appendix
- Eden ICC Profile (June 2017)
- Eden ICC Appendix
- Keswick & Solway ICC Profile (July 2017)
- Keswick & Solway ICC Appendix
- Workington ICC Profile (June 2017)
- Workington ICC Appendix
Health data is produced and provided by a range of sources including Public Health England, NHS Digital, the Department of Health; as well as local sources including Cumbria County Council and Cumbria Clinical Commissioning Group. Here you will find a range of key reports and surveys relating to the health and wellbeing of the people of Cumbria.
Adult Social Care is part of Cumbria County Council and is responsible for providing help to adults, and their carers, when accessing care and support. They provide information, advice and sign-posting; advice about housing; preventative services such as re-ablement and equipment; short-term services; care assessments; care and support plans; information about funding; advice on personal budgets; support to carers; and safeguarding adults.
Current Cumbria Observatory Briefings, Summaries & Resources
- Active Lives Survey Cumbria (October 2017)
- Cancer Mortality in Cumbria (September 2016)
- Avoidable Mortality in Cumbria: A Case File Review of 78 Suicides (November 2014)
- Deliberate Self-Harm across Cumbria (January – December 2013)
- Unintentional and Deliberate Injuries in Children and Young People across Cumbria (2012-13)
- Sexual Health provision: commissioned research into young people’s experiences of and knowledge of sexual health services in Cumbria. Cumbria Youth Alliance. 2013.
- An Analysis Of Injury Attendances Across Cumbria 2010/11 – 2012/13
- Avoidable Mortality in Cumbria, 2013
- Sexual Health Needs Review 2012
- Health Screening in Cumbria 2011
- Cumbria Gypsy & Traveller Needs Assessment 2010
- Cumbria Abortion Report 2010
- Autism Report, February 2012
- Child and Adolescent Mental Health Needs Assessment, February 2010
- Health Related Behaviour Survey 2012: Summary
- Health Related Behaviour Survey 2012: Trends
- Health Related Behaviour Survey 2012: Emotional Health & Well Being
- Health Related Behaviour Survey 2012: Risk Taking Behaviour
- Health Related Behaviour Survey 2012: Healthy Lifestyles
- Health Related Behaviour Survey 2012: Supplementary tables
Other key documents including Cumbria Health and Wellbeing Strategy 2016-2019
- Cumbria Health and Wellbeing Strategy 2016-2019
- Cumbria Health and Wellbeing Strategy Delivery Plan
- Public Health Annual Report – Cumbria County Council (external link)
- Pharmaceutical Needs Assessment 2014
- Pharmaceutical Needs Assessment Consultation 2017
- Cumbria Health Profile 2016
- Allerdale Health Profile 2016
- Barrow-in-Furness Health Profile 2016
- Carlisle Health Profile 2016
- Copeland Health Profile 2016
- Eden Health Profile 2016
- South Lakeland Health Profile 2016
- Public Health England Health Profiles
In 2018 the North Cumbria Health and Care Integrated Care Partnership funded the role of Health Partnerships Officer.
The role is hosted by Cumbria CVS and provides a practical link between the Third Sector and the NHS.
Clare Edwards started in post in April 2018.
She has two main roles:
i) To challenge NHS leaders to consider the value and impact of the Third Sector at a strategic level and how the NHS can work with the Third Sector more effectively
ii) To ensure that the local Third Sector is linked into our developing Integrated Care Communities at a local level.
As part of her role Clare supports the vibrant Action For Health network which connects with hundreds of people representing third sector and community groups and the NHS.
She supports the ICC reps – two sit on the steering group of each ICC representing the interests of the community and ensuring connections are made with groups locally.
She is also leading a pilot of ICC Third Sector Referral officers through an NHS England pilot which supports two part time reps with honorary NHS contracts to build those local connections into the heart of the clinical hubs.
Clare also supports people across the NHS to link with the third sector when thinking about service improvement.
This role has made an enormous difference to building relationships, changing perceptions and encouraging challenging conversations.
Become a member of North Cumbria Integrated Care NHS Foundation Trust
Being an NHS Foundation Trust means that you can have a say in their future. You can do this by joining the Trust as a member or by becoming a governor.
Their members and governors include staff, patients, patient’s families, people who live in our community and representatives from partner organisations.
As a member or governor, you can get involved in all sorts of activities and discussions about how are services can be developed and changed for the better.
Find out more about what Trust members and governors do and how you can get involved by selecting the relevant link below.
Remember: if you are a permanent member of staff at NCIC, you are already a member and so don't need to complete the process.
Healthwatch Cumbria is an independent organisation set up to champion the views of patients and social care users in Cumbria, with the goal of making services better and improving health and wellbeing.
You can also find out more about Healthwatch Cumbria
- Have your say. Call: 03003 038 567
- Email: email@example.com
Healthwatch Cumbria is an independent organisation set up to champion the views of patients and social care users in Cumbria, with the goal of making services better and improving health and wellbeing.
Cumbria CVS is a registered charity and membership organisation. They help community/voluntary/not-for-profit groups and organisations to develop and improve by providing training and services. In Cumbria it supports the Action for Health network sharing information and building relationships across our vibrant health related third sector organisations.
- Find out more about Cumbria CVS at cumbriacvs.org.uk
- Contact: 01768 800350
- Email: firstname.lastname@example.org
Maternity Voices Partnership
Maternity Voices is a team of volunteers who work alongside health professionals to make sure the voices of local Mum's and families are heard in maternity services.
If you would like to get in touch to find out more about Maternity Voices, give feedback or get involved, please email email@example.com
You can also email the Chair of the group: firstname.lastname@example.org
The Maternity Voices Partnership website is now live and features more information on the work of the group, how you can get involved, and upcoming events.
West Cumbrians' VOICE for Healthcare
VOICE is an independent non-political group formed in 2015 because of threats to health services in West Cumbria. Voice members engage with, question and pressure all the organisations involved in planning our services.
Visit their website here for more information or to get involved.
The public are invited to attend our Governing Body meetings, which are always held in public and are invited to ask questions at the start and end of each meeting.
Full details of the Governing Body Members, GP Leadership Team, the Senior Management Team and more can be found by following the links below:
Information about Governing Body meetings and relevant papers are accessible below.
We are committed to patient and public involvement.
- Information on Governing Body Meetings (including dates, agendas and minutes)
- Information on the Constitution, Standing Orders and Terms of Reference
- More information on 'how we make decisions', 'who we are and what we do', 'information and how we use it' and other key pages. This also includes links to our annual reports
The CCG also uses a range of targeted outreach approaches, including working with the voluntary and community sector to promote opportunities and broaden engagement to be more reflective of the population. We work closely with Cumbria CVS and Healthwatch Cumbria.
More information on these organisations in the organisation section on this page.
We previously used a healthcare company called iWantGreatCare. They released a case study in August 2016 which focused on the CCG called 'Ahead of its time: How NHS Cumbria CCG paved the way with continuous feedback to drive quality improvement across care settings'. You can read this report here.
Integrated Care Communities (ICCs) are also developing in north Cumbria with communities. An ICC works together to improve the overall health and wellbeing of the community.
We will do this by:
- Joining up health and care services to work better together.
- Providing more care out of hospital where possible.
- Supporting people to have information about their health conditions.
Health and social care professionals, GPs, the voluntary sector and the community will work as one team to support the health and wellbeing of local people.
The north Cumbria area is made up of eight ICCs based on groups of GP practices and their patients. By understanding the challenges that each area faces it is hoped that the community can work together with health and care organisations to improve the health and wellbeing of local people.
From here you can explore the developments and what has happened across these 8 areas so far, as well as much more information.
Consultant-led services will remain in west Cumbria following a decision by NHS North Cumbria Clinical Commissioning Group’s (CCG) Governing Body on 3 July 2019. It follows a 12 month period of review of progress to sustain and develop services and the recommendations of an Independent Review Group (IRG) made up of independent clinical specialists chaired by Dr Bill Kirkup CBE.
The review was commissioned following the Healthcare For The Future public consultation in Autumn 2016, and follows the decision made in March 2017 to continue services and test them while working with the public. The report acknowledges the hard work of staff in the service and the innovative work by the community to support services through the Working Together Group.
Dr David Rogers, medical director for NHS North Cumbria CCG, said: “The CCG has been committed to providing sustainable consultant-led services and we are pleased to see the hard work of a lot of people over a number of years being recognised.
“The Trust has faced problems recruiting and it is clear that is improving, and there has been considerable commitment from the staff to make things work.
“I also want to thank the people who have given up their time and got involved in ‘working together,’ they have made a real difference. It is clear when you read the Independent Review Group’s report, that three years on, we are now in a very different place.”
Stephen Eames, chief executive of the North Cumbria University Hospitals NHS Trust and Cumbria Partnership NHS Foundation Trust, said: “I am pleased the Independent Review Group has recognised the hard work of our staff at the West Cumberland Hospital as well as the work we have been doing to recruit staff. Our medical vacancies are significantly reduced from 2016, although we know there are still challenges in key areas.
“We have come a long way since the consultation and trying new ways of working with our community is making a real difference. It is good to see the impact of this innovative and constructive way of working. We now have an end to the uncertainty that has been surrounding the future of maternity services in West Cumbria that has inevitably caused anxiety for our staff and communities, and we can now get on with the job of providing good quality services to women and babies across our hospitals.”
The review by the Independent Review Group (IRG) noted the challenges faced by the service but were “impressed by the commitment shown to overcome the recruitment challenges, including some innovative approaches.”
The IRG report says: “The services are being maintained, and given the same commitment and ingenuity to overcome future challenges, they can be sustained in future. The Independent Review Group therefore recommends that a commitment should be given to sustain the current pattern of consultant-led units in both Whitehaven and Carlisle.
“In addition, we recommend the continuation of both alongside midwifery-led units to offer a choice of birth setting in line with the Better Births report.
“Finally, there will be future challenges to these services, but they also need stability. It is important that there is a commitment to maintaining vigilance and supporting innovative measures to counter these, continuing the collaborative Working Together approach between the community and the NHS.”
In November 2018 the CQC reported maternity across the Trust was rated as ‘good’ and a CQC review of patient experience saw it score highly.
The Venerable Richard Pratt, the Archdeacon of West Cumberland, the independent chair of the Working Together Group said: ““I am very grateful to all those - from the community and the NHS - who have been so committed to the Working Together process. I think it has had a huge impact in two ways.
“First, it has supported the NHS Trusts as they have changed the way in which they work, so that they have been able to think of and implement innovative ways to tackle the difficulties of providing maternity and other services at West Cumberland Hospital. Second it has helped to give Dr Bill Kirkup and his group confidence in what we - the community and the NHS - are doing in west Cumbria.
“As the report of the Independent Review Group makes clear, Working Together must continue so that maternity and other services are sustained into the future, and indeed so that both the NHS and the community change for the better so that we have a Health Service (not an illness service) and healthy communities.
“In Working Together we are tackling not just maternity but also telehealth, children’s health, recruitment and retention, experience of care at a distance, and so on – and there is a real excitement about this and lots to do!
“Our next Working Together Steering Group Meeting is at 6pm on Wed 17 July at the Oval Centre. If you are interested in being part of health services for the future, you will be very welcome.”
Today’s decision by NHS North Cumbria CCG – on behalf of our health and care system – will mean consultant-led services will continue at West Cumberland Hospital, along with midwifery-led care, offering more choice for women.
Cllr Stewart Young, chair of the Cumbria Health and Wellbeing Board, said: “I welcome the decision to accept the recommendations in this report. It secures the future of services which are vital for west Cumbria.
“The process that has led to this point has involved a commitment to listen to local people and work with them to design services which is to be applauded.
“It is important that this dialogue continues and that all parties work together to ensure local people receive the best possible care.”
Work to support services will continue and more information about Working Together and Co-production can be found here: www.northcumbriahealthandcare.nhs.uk/making-it-happen/co-production/
As part of Learning Disabilities Awareness Week 2019 the Clinical Commissioning Group (CCG) had the opportunity to be part of the #PeopleFirstTakeover
This gives people with a learning disability the opportunity to have real life experience of different job roles, learn new skills, and build aspirations.
We had a great morning as Nicky and Stef spent time with our Director of Nursing and Quality Anna Stabler, along with Chairman Jon Rush, Chief Operating Officer Peter Rooney, and our Engagement Team.
How the community is helping us through co-production / working together
Co-production utilises everyone’s ideas and energy and we have developed a toolkit based on our own experiences and developed with Healthwatch Cumbria and CLIC (Cumbria Learning and Improvement Collaborative) to support people to be able to get involved and share some of our learning so others can avoid some of the problems we have faced and overcome.
We want our public and patients to participate in shaping how our services and system develops.
The community is currently helping us through Co-production. Co-production is working together.
The NHS and social care system across north Cumbria values the voice of the experts - that's you and me who use the services ! The system is also now funding a post with Cumbria CVS to ensure that our third sector organisations are better plugged into our system. We want those representing carers, Alzheimers, disabilities and many more to have a clear voice and clear route into shaping and influencing how our system develops.
We know the NHS doesn’t have all the answers and we want to harness the energy, ideas and enthusiasm of our community to help us tackle the issues that are challenging our services.
Services are better when the voice of the patient, the community and the staff help shape the delivery of our health and care.
CLIC: Cumbria Learning and Improvement Collaborative offers training around co-production. Visit the CLIC website to find out more.
After the Healthcare For The Future consultation health leaders promised to work with our communities to implement changes and improve and develop our services. It is open to everyone who cares about our services and wants to work constructively to develop them.
We are learning as we go about effective ‘working together’ and will share best practice as it develops.
- E-mail email@example.com if you would like to get involved
- Visitour co-production pages to find out more - including areas of focus, details and documents for upcoming meetings.
- Go to terms of Reference and the Success Criteria for the Working Together Steering Group
- Go to the Healthcare for the Future consultation website, which includes information of the consultation, public meetings, and full documentations and recordings
More about our Co-production can be found here.
We also have a special co-production case study on Macmillan Community Cancer Nursing Service - find out more here
Below are some project videos which were achieved with co-production work with the public, other organisations and various other collaborations.
- YouTube: Health checks at Carlisle community event
- YouTube: NHS70 - Carlisle parkrun
- YouTube: Making Plans For Nigel - autism and learning disabilities - signed version
- YouTube: Engaging for Improvement - CLIC
- YouTube: NHS Child Health App
- YouTube: Managing Childhood Asthma - When Joe Met Lazonby School
- YouTube: NHS70 - Stories
- YouTube: Stroke Prevention
- YouTube: North Lakes School steal the show at CLIC's LOC in the Lakes event (@SingUpTweets)
- YouTube: Maternity and Paediatric Services Co Production Day with Prof. Stephen Singleton
- YouTube: Cumbria health professionals: recruitment video
The tool kit has been produced and developed thanks to the hard work, honest conversations and energy of:
- People across our community;
- Members of the Working Together Groups;
- Members of the Community Alliances in Alston, Maryport and Wigton;
- The West Cumbria Community Forum;
- The Third Sector and public sector staff;
- All the staff and patients of our North Cumbria Heal;th and Care System
Developed by Healthwatch Cumbria and Cumbria Learning and Improvement Collaborative (CLIC).
This is our first attempt to create a guide to what can help co-production put down roots and grow.
We are also asking for feedback so users of the toolkit can let us know what was helpful, what we are missing and provide us with some feedback at firstname.lastname@example.org
- The Cumbrian Way Towards Co-production
- A Bite Size Training Area
- What we have learned... that can help you
- Video clips of our stories
- and more